We're home from a busy week in NY. Suzy did well with her therapy program. She did 2 sessions a day (except on Thanksgiving day). She is making a little progress. When I say "little" - I mean LITTLE. Her motor progress could be measured with a millimeter. I BELIEVE this is the physical program for her.... but how do we get done all that needs to be accomplished in just 4 days a month????
I am very frustrated. I feel that Suzy needs to be in NY every day of the week working with this man. I feel that her future depends on it. So - now what do I do? How do I prioritize her future? How do I justify having her in NY when the rest of my family is in VA? I can't. So does that mean I am content to having her in a wheelchair for her whole life? Do I dare make that decision? or do I just continue on the path of getting up there when I can, and hoping and praying for the best??.....God...... I'm stressed.
I try to highlight the positive on this website. I think I may be showing too much of the "good", and not enough of the "bad". Yes, she looks great in pictures. However, I realized that she looks SO MUCH better in pictures than in real life. A women (who I thought followed Suzy's journey fairly well) and I were having a discussion 2 weeks ago. I mentioned something about how heavy it was to lift her wheelchair in and out of the car. She asked, "Isn't Suzy doing some walking yet?" My mouth must have fallen opened. I answered, "Why, yes... she walked in my dream last night."
Seriously.... Suzy is like a turtle that is on the side of the road tipped over on his back. If you lay Suzy on the floor on her back, she will stay there forever. She will kick her legs, and flap her arms a little. And she will get frustrated and bored, and then cry. She might even get her fingers in her mouth so she can suck on them to comfort herself. A couple of times she flipped up onto her left side!..... but that's about it. If you place toys hanging above her to play with, she might touch them with her right hand. (that happened a few times last month).
If you plop her down into a sit position, she will smile, and hold herself for about 10 seconds. She will tumble over to the side. She is starting to reach out her arms to try and catch herself when she falls. (hooray!)
If you put her on her tummy, she can lift her head and look around. She will suck her fingers. She can roll over to her right side and land on her back (hooray). But, she can't reach out and grab or play with a toy. She can't push up onto her elbows. She certainly can't crawl or move forward.
And she certainly can't even come close to walking. (yet)!
But remain positive - I WILL!!
The rest of the thanksgiving NY trip was great. We took my neice (Carley, who is 9). Gracie and Maggie had a playmate. They had a blast. We went to the Macy's parade. We couldn't see anything but the occasional float go by. There were 3 million people there, and about 1 million of them were standing in front of us!! So, we left early and went to a nearby Hooters for beer and fries!! My kind of thanksgiving morning parade.
And we had a wonderful feast at Ocean Grill in Central Park with my sister and her whole family.
I loaded up some pictures under -"PHOTOS-3rd trip to NY"
I hope you all had a wonderful week.